HUMAN AND SOCIAL SCIENCES AND OUTCOME RESEARCH (SHARE)

The SHARE Curie team, led by Sylvie Dolbeault MD, PhD, HDR and Anne Brédart, PhD, HDR in psychology, is made up of researchers directly involved in HSS research: supportive care professionals (psycho-oncology, palliative care, algology, oncogeriatrics, therapeutic education), methodologists, public health doctors, philosophers, specialists in medical ethics, oncologists. The SHARE team welcomes master’s, doctoral and post-doctoral students.

The themes in which our team is involved are:

• Experience of patients and their loved ones, quality of life and care satisfaction
• Identifying and addressing the needs and distress of oncology patients
• Symptom management (pain, fatigue, malnutrition, distress, etc.)
• Evaluation of complex interventions
• Taking vulnerability factors in care into account
• Impact of new care practices and organizations
• Ethical issues

The main research themes of the team are :

• Describe and analyze the clinical, psychological, social, practical and ethical dimensions of the quality of life of cancer patients, the impact of treatments, professional practices and the organization of oncology care
• Analyze new intervention modalities and the integration of Patient Reported Outcomes (PROs) into clinical practice
• Identify the factors of inequality of access to care and economic

Contribute to improving integrated and medical care

The concrete objectives of the SHARE team :

• Carry out interdisciplinary research projects within the frame of the defined axes
• Respond to calls for projects and obtain funding to develop these areas of research
• Collaborate with other Institut Curie teams in clinical research, fundamental or translational research in the SHS-OR dimensions of projects
• Establish partnerships with national and international SHS teams
• Disseminate research results through publications, participation in congresses and the organization of seminars or any other method of disseminating the knowledge acquired.

SHS: Studies carried out in the field of Human and Social Sciences (SHS) focus on the experience of patients and their loved ones, including psychological distress and adjustment, quality of life and supportive care needs, communication with healthcare professionals, satisfaction with care, as well as practices, decision-making processes and the organization of care. Quantitative observational and interventional as well as qualitative studies can be carried out to determine the factors of patient/relative vulnerability or inequality of care. The interventions evaluated are complex; they aim to improve the identification and response to care needs, to improve the psychological impacts of the illness and treatments, and/or specific care.

OR: This term brings together evaluations of the impact of health actions on the future of patients. There is no precise or consensual definition of this type of research. The impact is measured in terms of quality of care, quality of life and/or needs of patients, largely in line with certain research in HSS on this theme, costs, and with a more medical aspect of side effects of treatments, resistance treatments and prognosis